Say a little prayer

I'm usually not the person who asks much of others and I usually don't continue on a story that someone sends to me. But, I feel that this is something that needs to be passed on and I hope that you will pass it on as well.

The following explanation comes from my cousin Jennifer. She and Lacey have been close friends since living across from each other their freshman year at Western. Lacey and I were also together a lot at a lot of places when we were both in school and some even since we have been out. She is a sweet person with a big heart. I hate that she is having to go through all this. I have prayed a lot for this baby and for Lacey and her husband Jim. Please help me out and pray for Lacey, Jim, and baby CeCe.

Some of you know my friend, Lacey, and the story of her baby Cecilia. For those that do not here is a quick overview. She was born in February and immediately started having seizures. She was transferred from Summit to Centennial where she stayed for a couple of weeks to monitor the seizures to see what was causing them. After a couple of weeks they said they had mis-diagnosed her and she was actually not having seizures but had a sleep disorder that caused her to twitch in her sleep which they thought were seizures. They sent her to a specialist who also agreed that she had this sleep disorder not seizures. 5 weeks ago she got really sick and they took her to the ER at Vanderbilt. Vanderbilt said that she was in fact having seizures and had been the entire time. At that point she was having up to 10 seizures a day. Medication is not stopping her from having the seizures. At this time she is still having around 5 a day. Her condition has worsened over the past 5 weeks to where she has had to be on oxygen and feeding tubes all the time. She can no longer swallow on her on. She has been in ICU at Vandy for the past 5 weeks. Yesterday they gave Lacey the news that there is a 50/50 chance that she has a disorder called Malignant Migrating Epilepsy Syndrome. If she does have this syndrome it will most likely kill her before her 1^st birthday. They are waiting for test results to come back any day now to confirm if it is or is not this syndrome. I did a lot of research on it last night and it is a very rare disease, in 2005 there were only 25 known cases of it. There are not any known causes or cures for it at this time.

Please say lots of prayers for baby Cecilia and her family that they get good news in the next couple of days.